Tag: down syndrome
REVIEW – Pictello Talking Photo Album Creation App
My youngest son has Down Syndrome and severe speech delays. There are many times he cannot make himself understood, and others that only his father and I can understand him. Because he can’t always communicate effectively, he gets frustrated at times, understandably so. I’ve often felt most sympathetic for him at times like when he [...]
World Down Syndrome Day Is Today For You And Every Day For Me
I woke up this morning at 3:40 so I could get ready for work. Today was a day much like many others and yet a little bit different. Today, you see, is World Down Syndrome Day. World Down Syndrome Day occurs each year on March 21. The reason March 21 is World Down Syndrome Day [...]
31 Day Challenge – Something That Bugs Me
Today’s prompt in the 31 Day Challenge is Something that bugs you. Nothing bugs me more than the misuse and abuse of the word retarded. NOTHING. I’ve written about it before and will be writing about it again I’m sure. It’s wrong, hurtful and ignorant. My favorite post is my 2009 post for World Down [...]
HOLIDAY GIFT GUIDE – The Child King DVD
GIFT IDEA – THE CHILD KING DVD The Story Behind The Child King: Making The Child King The Child King is the story of two brothers who embark on a memorable quest to find Santa Claus at the North Pole. The film stars Peter Johnson, a special young man from Scituate, Massachusetts who made cinema [...]
I’m A CVS Caremark All Kids Can Grant Winner!
I recently received some very exciting news. Back in March, TwitterMoms gave me a heads up on the CVS Caremark All Kids Can campaign. My youngest son has Down Syndrome. I thought it was perfect timing for a campaign like this and I wrote a post about the importance of inclusion. The title was “With [...]
The Alzheimer’s Project on HBO
Last Thursday I was privileged to have the honor to be one of the members of The Silicon Valley Moms Blog group to take part in a private conference call with Maria Shriver. Yep, Maria Shriver. For those of you that don’t know who she is, she’s kind of a big deal. A really big [...]
An Apology Isn’t Enough
FYI – This was an original post to the New Jersey Moms Blog, which is no longer live. It was published on 03/22/09. The link to it is/was http://svmomblog.typepad.com/new_jersey_moms_blog/2009/03/the-problem-with-apologies-pic-sent.html. If you put the link into the wayback machine you can read the comments as well. Prior to the election I was never completely bowled over [...]
World Down Syndrome Day
In a day where people use the word retarded all too easily it is obvious that our society could benefit from more advocacy, education and positive exposure of special needs. To that end, today – World Down Syndrome Day – I would like to tell you about my nine year old son, who has Down [...]
With inclusion, All Kids Can
You might or might not know that my youngest CJ has Down Syndrome, heart disease, Celiac disease, Alopecia areata, orthopedic problems, learning disabilities, severe speech delays and a hearing problem. Some would say he’s disabled, I prefer the terms differently abled and special needs. No matter what you call it, we as a society have [...]
Alzheimer’s Association Memory Walk
I’ve written previously about Alzheimer’s and how it relates to my family. My grandma almost certainly had it before she passed, but back in those days we knew so much less about it. Odds are higher that my youngest son may develop Alzheimer’s because of it’s association with Down Syndrome. I pray every day a [...]
Sign language
As you may or may not know, my youngest son has Down Syndrome. His speech is quite delayed and he gets frustrated. Lately we have been thinking that we need to focus more on sign language, which we know little of. I was checking out the Signing Time website and got to thinking that this [...]
Teenager taking a special plunge
I had tears in my eyes when I read this, so I’m sending it over to Skeet for Share Some Good Stuff. Don’t worry, they were good tears. As mentioned on my Home and Vacation blog a while back, there are annual winter ocean plunges in New Jersey that help raise much needed funds for [...]
Who remembers The Velveteen Rabbit?
Who remembers the book The Velveteen Rabbit? Maybe you remember reading it to your kids. Maybe you remember someone reading it to you. I’m sure that there are as many people that know about it as there are people that don’t know about it. Turns out, if you’re looking for a great children’s book then [...]
A special athlete
I’m submitting this to Skeet’s Share Some Good Stuff. He may be a one of a kind high school athlete. He goes to high school in Cherry Hill, a little over an hour away from me. He letters in two varsity sports, basketball and golf. He has Down Syndrome. His name is Brad, and he [...]
Good stuff, Jersey style
My pal Skeet writes Share Some Good Stuff, which is a weekly roundup of good news submitted by readers concerning events that happened in their area. My good news for this weekstems from an article I read on the NJ Herald recently. In Sussex County, about an hour and a half from here, a new [...]
