Tag: cj
Potty poetry
CJ’s got the pee pee thing down pretty pat now, he just needs reminding. My hubby RB is a very creative guy. Since we met, one thing that has always amazed me is his ability to come up with alternate lyrics to songs within seconds. Some of my favorites are very much off color so [...]
I have a happy traveler, which makes me a happy driver
Because he is on the tiny side and because he doesn’t always understand what’s right and what’s wrong, CJ is still in a car seat at the age of nine. It isn’t as odd as it sounds to some, he only weights 50 pounds. Because he is a boy he isn’t always the neatest child. [...]
Ernie and Bert are in the house!
Being developmentally delayed means CJ doesn’t always play with toys intended for his age group. We often have to look at toys meant for younger children. He’s too old for toys from the youngest age groups and too old for toys from the older age groups. He’s nine, but he still loves some of the [...]
I need a Dymo on my desk
Things in my house can get a little crazy and occasionally even become unorganized. Once the school year starts it gets even worse. I don’t remember my first day of school (presumably because I was four then and I’m old now) but I know that each year the first week TJ is back to school [...]
Out of the mouths of babes
This morning when I got up CJ pointed at the tv and said broke. There was no picture, only a message to call customer service and ask for extension 721. That’s Directv’s polite way of reminding me that I owe them money and that I won’t get my satellite signal back until they get it. [...]
Wiping butt and taking names – Huggies Inside The Diaper contest
One thing I must admit is that Huggies wipes are THE best. They’re nice and thick and smell good. They’re not the cheapest and they’re not the most expensive. And best of all, sometimes I can get them in a cute Winnie The Pooh container! CJ is still potty training, so we always have wipes [...]
Vusion ointment, getting to the bottom of diaper rash
My children may not be babies any more but I still contend with the occasional bout of diaper rash. CJ is doing great with potty training but still has the occasional accident. The rashes he gets from time to time now are nowhere near as severe as some that he had when he was younger. [...]
On the first day of school
As a young child, I used to cry when a bus went by our house in the morning because I really wanted to go to school. I started going to school at the age of 4 and enjoyed it for years to come. It was a private school and we wore uniforms, so there was [...]
Alzheimer’s Association Memory Walk
I’ve written previously about Alzheimer’s and how it relates to my family. My grandma almost certainly had it before she passed, but back in those days we knew so much less about it. Odds are higher that my youngest son may develop Alzheimer’s because of it’s association with Down Syndrome. I pray every day a [...]
An odd thing for a young child to watch
Over the past several weeks we’ve discovered that CJ likes to watch golf on television. He likes it a lot. When the golfer swings, CJ squeals with excitement. He will pretend to play golf by placing a ball on the floor and swinging at it with anything nearby that passes for a pretend club. We [...]
Second verse same as the first
So CJ had his second auditory brainstem response test under sedation this morning. I cannot say enough goog things about our experience at JFK. This test was oringinally done at CHOP, and told us that there is a hearing problem. CHOP fitted CJ with a loaner hearing aid. We went to an audiologist and dispenser [...]
Sign language
As you may or may not know, my youngest son has Down Syndrome. His speech is quite delayed and he gets frustrated. Lately we have been thinking that we need to focus more on sign language, which we know little of. I was checking out the Signing Time website and got to thinking that this [...]
Who remembers The Velveteen Rabbit?
Who remembers the book The Velveteen Rabbit? Maybe you remember reading it to your kids. Maybe you remember someone reading it to you. I’m sure that there are as many people that know about it as there are people that don’t know about it. Turns out, if you’re looking for a great children’s book then [...]
Spreading some more Jersey sunshine
I read as many articles as I can that relate to Down Syndrome because my eight year old has Down Syndrome. I’m always on the look out for a new health, current events or human interest story. I like to share what I find because the world needs to realize that people with Down Syndrome [...]
I’ve come a long way baby
So at one of the forums I visit I noticed someone was using the word retarded in that way that ignorant people do – incorrectly and negatively. I didn’t leave and I didn’t lose my temper. I posted asking her why people used the word in that way implying something bad. She replied back she [...]
